Labor day weekend

 The last weekend of our summer is over. It burned bright and ended softly like the embers of the last campfire. It was a wonderful weekend filled with family and friends, food and drink, fun and more fun. I have such a blessed life. I am thankful for every day.
    Our weekend was shortened as I had to work Saturday and arrived at the lake at 4 o'clock Saturday  afternoon as opposed to Friday evening. It was a great weekend all the same. Monday morning we woke early to see  a lake as smooth as glass. Mandy and I woke our daughter and headed for the boat. We were  the only boat on the water at 8am save a few fishing boats. I hope we didn't disturb their morning too much. The air was cold and so was the water but it was the last time we would be able to ski this year and the best water we had seen all season. We all took our turn behind the boat while our friends were just stirring around the morning campfire. I couldn't help letting out several rebel yells as I took my turn on the water. It was amazingly flat and my ski cut through the water like butter. It was the perfect way to end a perfect summer.

The boat is washed waxed drained covered and in the garage. The trailer is home and covered as well. The skis, tube, and wake-board, are stored and the wet suits and ski vests are hanging in the closet. There is a chill in the air today. It is like a switch was flipped and summer turned to fall. The rain came with thunder and lighting yesterday announcing the change in seasons. This sounds poetic and yet it is the absolute truth. Soon the country air will be a haze with wood smoke. I love the smell of fall. I feel like hibernating. I wish I was a bear. The colors will soon begin to change. How is it that there is so much beauty in death? The fall season is my time of reflection. The days grow shorter, the nights colder. A good book, a warm fire, and a bowl of potato soup become my best friends. Of all the seasons, fall is my second favorite. My body is still tan and I look and feel in shape from the summer activities. It is my time to try and fill the freezer. Salmon are in the river and there will be many good clamming tides. Deer and elk season will provide meat and pepperoni if I have any luck at all. Winter will soon arrive. I will become pale and start to look like a cancer patient. The sky will be grey. The days will be short. The world will sleep. Its funny to me how the seasons represent our life. Spring is our birth. Winter our death and yet even in the darkest of winter spring is just around the corner.

Zero

In 2006 my Psa stood at 3216. It took a little over a year for Hormone Therapy to drop it to an undetectable level. It was at this point that I entered the zero club. The zero club is a club that every man with prostate cancer wants to be in. If there is no Psa there is no Cancer. You see, not only did my Psa drop to an undetectable level but C/T and bone scans revealed that the tumors had also shrunk to undetectable levels. I still had microscopic cancer in my body but I was in as complete a remission as a stage 4 terminal cancer patient could hope for. It lasted 18 months. It was during this time that I began to believe I had beaten it all together. I was doing so well that I was even allowed a break from treatment that lasted an entire year.  It didn't last. 33 months into the journey, my membership in the zero club was revoked. My Psa had risen obove 0.05 and it just kept on rising. Mid way through year number 5 it had risen to around 100. The tumors in my lungs were back. It was at this time that I was infused with Provenge. After my infusion I took Casodex to drop my Psa. It dropped and the Provenge gave me 14 side effect free, progression free months. When my Psa hit 28 I went on Zytiga. 9 months into this treatment I am once again in the zero club. Friggin Amazing!!!!! 

  I have never been a statistic kind of guy but I really have to wonder about this one. I mean let's face it the odds of getting back into the club at month 94 seem just a tad slim if you ask me. To say that I am happy is the mother of all under statements. I am elated. This last weekend we celebrated by going to the high desert in Oregon and hiking in the mountains as well as doing a little rock climbing. Nothing too extreme. We do not require rope and D-rings or a climbing harness. It was beautiful. I felt so alive. 

We climbed to the top of a ridge where a large boulder had fallen from above and was perched atop the ridge like an exclamation point. I just had to take a selfy when I was standing next to that rock.

It was a great weekend spent with family and friends. 

   Today as I sat reflecting on the weekend it hit me that my bloodwork really is at an undetectable level. After eight years the cancer is undetectable. All I can say is Glory to God. I spent the weekend in a place so beautiful it takes your breathe away. The water color painted sky could only have been painted by a master artist. I believe in a creator. I know who has blessed me. I just really don't know why. Todd

Spring time

    The first day of spring always makes me smile. As I stepped out of the truck today I noticed the buds on the cherry tree. Soon it will explode with pink flowers. As the days get longer and warmer I feel rejuvenated. Humming birds have already begun to chase each other around our neighborhood  The deer are everywhere, most with one or two new born fawns in tow. The Canadian geese are paired up around the banks of the lake. In no time at all the goslings will hatch and join their parents on the water. Spring is a time of rebirth yet for me it has a deeper meaning. I survived through another cold wet winter. This is my eighth since this journey began. Somehow I always knew it would be this way but I am always surprised by how long it has been. Spring is also a strange time in western Washington. It is a time of unpredictable weather. The first year in our home it snowed 3 inches the second week of April and again in May. It was gone by noon when the mercury rose to 60 degrees. Mostly it rains in the spring. Sometimes it rains for weeks at a time. One year we had a sunny weekend so I mowed the lawn. It was over a foot tall before I could mow it again. In the morning I head to work donning a sweatshirt and jacket. I return home in a tee-shirt. Occasionally however the sun does come out. When it does it is easy to see why some call this place God's country. The blue of the sky is an amazing contrast to the green that surrounds and envelopes you. Everywhere you look there is wildlife. Fish jump in the lakes and streams while beaver and otter frolic or set about their tasks. On one particular day as Mandy and I were fishing the banks of the South Toutle River, a deer crossed the river just a few feet away, a beaver swam up the river past us and then stood on an outcropping of rock and began to bathe himself, and a great blue Heron landed and began to fish. This all took place inside of 15 minutes. The rivers are running high right now. The ground is saturated and our yard is more like a marsh than anything else. Mud slides are happening everywhere. This year we have had 4 inches of rain in March which is twice the normal rainfall for this time of year. It is years like this when I am glad we don't live on or below a hillside. My heart goes out to the people of Oso Washington where half the population of that small town was buried in a horrific mud slide. The morning news quoted an official who stated that some of the residents my never be found and will most likely remain buried beneath the mud and debris. Such a sad thing for the love ones of the lost. Life is so short. It can end in the blink of an eye and a flash of terror. The world is a violent ever changing place. 

   I consider myself to be lucky. Yes, cancer may one day take my life but at least I had a warning. I was given the opportunity to live like tomorrow may never come. I was able to mend relationships and right wrongs. I was allowed the time to show my friends and family how much they mean to me. I was afforded the luxury of laying the foundation of a life without me for Mandy. I am blessed. One day cancer might win but at least I was able to take it a full 15 rounds. Who knows, when the fight is over it could perhaps end in a draw. I will be a better man for having fought the battle having lived to the fullest each day I was given. I pray for the people of Oso and the families who have lost loved ones without every being able to say goodbye. It is the same for the people who have lost love ones on flight 370.

   I hope as disasters unfold and hearts are torn apart that we who observe take lesson from the tradgedy. Let those you love know each day how much you care. You may never have the time to say goodbye. Todd

A little humor can go a long way

   Laughter is the best medicine. It is a true statement. I read somewhere that laughter can help fight disease. I love to laugh. It is one of many things that Mandy and I share. It is not always easy but the potential is always there. In the last 8 years we have had much opportunity to be depressed as we fight prostate cancer but some how we always manage to find the humor in things. Maybe we are just looney.
  My first weeks were tough as I began this fight. Mandy and I were new in our relationship and the prognosis was not good. Mandy cried a lot and I had more sleepless nights than I care to remember. I felt so ripped off. I had only begun to get my life back together after losing everything. I was in love. The future was so full of promise. Then my doctor dropped the bomb. I still remember the day that everything changed. I stood at the edge of a bridge looking down at the river below. I was afraid. It was a long way down. A voice in my head said "what are you afraid of, you have terminal cancer". As Mandy watched from below I threw caution and possibly common sense to wind and jumped. The acceleration was exhilarating as the water rushed up to meet me. The impact also hurt like crazy but it didn't matter. I had overcome my fear and let go. I would like to add a word of caution to those who might find the urge to leap off a perfectly good bridge. If you have Prostate cancer, don't do it. The force of the impact was in the same proximity of my grossly enlarged prostate. It was about the same sensation as I imagine a D.R.E. with a baseball bat would feel like
   Jumping from that bridge was a turning point in our fight. It was an outward expression of something that was happening in my mind. I realized in that instance that I had nothing to be afraid of.  I might not live very long but the life I had left would no longer be dominated by fear. I was free. As I swam to the bank of the river in a great deal of pain, all I could do was laugh. Laughter became our weapon. We wield it freely.
   In the early days I had oncologist appointments every thirty days. I had a P.S.A. test a week after my first Lupron shot and the number had already dropped from over 3200 to just above 2900. It was working. Each visit thereafter provided more and more hope as the numbers slowly fell to an undetectable level. Unfortunately the side effects of the medication were also in full effect.  I will never forget the night Mandy and I laughed ourselves to tears. It was late and as she held me close she told me I was a super hero. I immediately started cracking up and said "it's true, I am Lupron man.... My super hero weapon is the hot flash ray of death" It sounds corny I know but we were laughing hysterically until the tears were flowing from our eyes and our stomach muscles ached. It has always been that way. It helps that we are each others best friends. I honestly don't know what I would do without her. I know she feels the same about me.
   Cancer has stolen so many things from us. Guys and their wives who have experienced hormone therapy know what I am talking about. Even in those things we have been fortunate in the fact that it hasn't stolen it all. In some ways we have come to appreciate those moments all the more. Cancer has only the power that we give it and Mandy and I refuse to relinquish any control. It will not steal our spirit. It will not steal our joy and it will not steal our sense of humor. God willing it will not steal our future. 

   Today we are shopping. Mandy turned 35 last week and a shopping trip for Caribbean wear was part of my gift to her. I am sitting outside the dressing room in the husband chair provided listening to bad pop music turned up twenty decibels too loud as Mandy keeps the fashionistas busy bringing her different clothes to try on. Hopefully shoe shopping is also on the list. She is just so cute when she gets new clothes. As my pending disability retirement looms in the coming year I wonder if it is the right thing to do. Our daughter will be going to college in a couple of years. I am only 50 and although I am stage 4 I have been for almost 8 years and I have continued to work every day. I wonder if retiring is the first step in giving up. I would like to believe that it's not the case but it is a question that for now has no answers. The truth is that financially we would be in much better shape if I retire but my income will be frozen at that point. The new union contract will be coming this June. If the incentive to stay is good enough then my plans may change. In the meantime I will laugh daily. I will love often. I will live each day for all that it has to offer. Todd

In like a lion

   It is said that March roars in like a lion and goes out like a lamb. In the Pacific Northwest that means a gradual transition from cold rain to warm rain. The forecast called for rain or snow today with a steady stream of storms coming in off the ocean for the next week or better. Yesterday we took advantage of a fairly dry day to work outdoors on the deck and do yard clean-up. We have several large cedar and Douglas fir trees in the back yard and recent wind storms made a real mess of things. The burn pile from yesterday was still glowing red this morning when they called me in on a breakdown at work. I hate coming in on days off but it pays well and the work is really easy today. 

    We bought our home 6 years ago next month. After living in a ramshackle condemned double wide trailer for the first two years of our life together and struggling the entire time to get into a home, moving in was a dream come true. Our home was built in 1979 and a 24x24 family room was added on ten years later. The home was remodeled just before we purchased it but was obviously done on a tight budget using the cheapest materials available. After a couple years we set to work making it our own. It is small, 1550 sq. ft. but it is perfect for the three of us. Last year we ripped out the rotting wrap around deck and began the tedious job of replacement. I am a tight wad of sorts. I just can't bring myself to pay someone to do a job I can do myself. Over the years I have learned to do many different things. I am a novice carpenter, electrician, auto and diesel mechanic, mason, and a journeyman pipe fitter. I am also an expert roofer.  The only thing I won't do is drywall. I will hang the rock but I let the pro's finish it out. Beng called into work today paid for the deck wood we bought and installed yesterday. The new front window we ordered will be here next week so I imagine I will install the window and finish the hand rail on the deck next weekend. I have already decided to take Friday off and make it a three day weekend to finish the projects and have some much needed Todd and Mandy time. Retirement sounds better and better all the time.

   My Oncologist told me he would write a letter to Social Security and told me that going out on disability would go smoothly. His reasoning was simple. I am terminal. I have cancer in my bones. The work I do breaks down my body. After saying this, he urged me to keep working. He asked what I felt were pertinent questions. Where are your friends? What will you do to overcome boredom and give value to your life? He said he has seen too many retire too soon and feel they have nothing left to live for. Sigh!!!! I am tired of working but sadly, he is right. My friends are all working every day. Nobody would come hang out with me. Mandy would be at work all day. I would most likely go insane.

   They don't hand out instruction manuals with this crap. Prior to being pumped full of female hormones I wouldn't have read it anyway. After eight years of Lupron I would read it in detail. I get to go home to my wife in a half hour. I think the clock is slow. I will write more soon but for now, happy Sunday, todd

Retirement. Hmmmm!!!

   Today was a tough day of a tough week. Tomorrow is Friday. I can truly relate to TGIF. As I sit in this really uncomfortable chair at the optometrist my oncology appointment an hour behind me plays through my head. Was that today or was it last month. It could have been. They are always the same. Today I am tired. It shows in my eyes and in my posture. Today I feel like a beaten dog. I am not beaten yet the beatings continue. Today I survived. Today,  for the first time I wanted to quit going to work . Today I thought of retirement. I could walk away. I could stay home each and every day. What would I do? Sleeping in sounds nice but then what? My friends are at work. I could afford it. We would get by. I don't just want to get by. I am 50 years old. 55 seems like a realistic goal. In five years I should have built up enough to pay off the house. In five years the bulk of our bills will be paid off and our daughter should be finishing her junior year of college. Five years.... It will pass like a gentle breeze. It seems a long way off. It feels as though it will never get here at all. I have terminal cancer. Realistically five years could be the rest of my life. I can't think that way though. Those thoughts must remain in the shadows. I have today and God willing I will have tomorrow. 

    Cancer is not in control. I am not in control but I must be positive with that which I am in control of. It is a mental masturbation. It is a game played out daily in the depth of my psyche. Some days I am th windshield and others the bug. Today I was the bug. Today I lost the game and yet as I readied for bed I took a moment and looked online to see if my P.S.A. had been posted. As my heart raced and my hands trembled I braced for the worst while praying for the best. My prayers were answered with another 45% drop. My P.S.A. is now at 0.10. I will be in the zero club next month if the trend continues. My spirit was resurrected in that moment and although it was a miserable day that had beaten me near submission there was victory in the end. I know that it will always be this way. In my darkest hour there will always be a light. 

   I always reread my posts before I publish them to edit the content. I believe I will leave this one as written. God bless..... Todd

It's that time of the month again

   I am sorry I haven't written in a long time. We have been doing home remodeling and there just hasn't been enough hours in the day. I love our home but it has issues. The biggest issue is that when the wind blows the draperies move. In the last few weeks we have been trying to remedy the problem. New doors and windows have been on the menu. It is a painstakingly slow process but to me it is fun. We fell in love with our home when we found it but as the new love faded we set to making changes. We are to the point of having only major changes left to make. Doors, windows, carpeting, and hardwood. Painting the house is on the agenda as well as adding covered R.V. space and my personal favorite, enlarge the master bedroom and add walk-in closets and an on-suite
   I see my Oncologist tomorrow and I can feel my blood pressure rising. It use to be that I only felt this way 4 times per year but now with the Zytiga it is a monthly event. Every 28 days I have to brace myself for another P.S.A. test. It is hard for people without cancer to grasp the emotional turmoil a cancer patient must endure every day. We do our best to cope but sometimes it is just plain hard. How long until the medication fails. What will the next one be and how long will it last. They all fail. That is the problem with cancer. The drugs only work for so long. I ache at times. I want life to continue as it is right now. I love my life. It took me 42 years to find real happiness. I want it to last. Reality is that nothing lasts forever. Life changes. We age. We die. Friday I will get my test results. God willing, they will remain the same or lower. Either way I will know something. Next month it will begin again. I never get use to it. I never will. In between I will live. In between I will love. In between I will have a really good time.
  Tonight is the love of my life's birthday. Tonight I forget cancer yet again and devote this evening to her. I can worry tomorrow. Tonight I must live. Happy Birthday Mandy. I love you. Todd