A sometimes daily, sometimes not, ongoing story about living life out loud despite a diagnosis of terminal prostate cancer.
Tuesday, December 18, 2018
Drug withdrawal
Monday, December 10, 2018
A new chapter
Friday, September 21, 2018
Bisphosphonates
Bisphosphonates are a class of drugs that prevent the loss of bone density and are used to treat osteoporosis and similar diseases. They are the most commonly prescribed drugs used to treat osteoporosis. Evidence shows that they reduce the risk of fracture.
Bone tissue undergoes constant rebuilding and is kept balanced by (osteoblast creating bone) and (osteoclasts Destroying bone). Bisphosphonates keep bone matter from being absorbed by encouraging osteoclasts to undergo cell death, slowing bone loss.
The uses of bisphosphonates include the prevention and treatment of osteoporosis , bone metastasis , and other conditions that cause bone fragility.
Bisphosphonates, when administered intravenously for the treatment of cancer, have been associated with osteonecrosis ( Bone Death ) of the jaw with most cases occurring following high-dose intravenous administration used for some cancer patients. Some 60% of cases are preceded by a dental surgical procedure (that involves the bone), and it has been suggested that bisphosphonate treatment should be postponed until after any dental work to eliminate potential sites of infection. A number of cases of severe bone, joint, or musculoskeletal pain have also been reported. Common Bisphosphonate names are Pamidronate, Neridronate Olpadronate Fosamax Boniva Actonel and Zometa. There are others.
How doctors prescribe Bisphosphonates has evolved over time. Standard practice several years ago called for monthly ongoing infusions. It was then discovered that patients received the same benefit if they only received an infusion every 4 months. Recently studied have shown patients should receive Bisphosphonates no more than two years. Longer use can lead to bone softening and fracture risks. It appears that after 2 years the drug has the potential to do more harm than good.
If your doctor feels you may need Bisphosphonates, it is important to have a complete Dental Examination to determine if you are in need of any dental work requiring bone involvement. Examples include, extractions, implants, and gum tissue grafts. If you require dental work it is important to have it all work completed prior to starting treatment. Bisphosphonates have a half life of 10 years or so and you cannot have any dental work involving bone until the medication is no longer in your bones.
Bisphosphonates are a very effective treatment and are well tolerated by most patients. They are effective against osteoporosis and treating bone metastasis by slowing the growth of tumors on the bone.
Appointment anxiety
The first thing that changed appointment anxiety was making peace with the disease and my own mortality. The process began when our band played at a benefit for a 4 year old little girl who was battling a rare cancer and was losing the fight. Afterward I could not look at my situation the same. She was only 4 Years old. She had never known what it was like to be a little girl. Her entire life was cancer, doctors, chemo, sickness, and hospitals. We all leave this world. My life, despite the challenges and pitfalls, has been amazing. There are many things that I still want to see and do but I have not wasted a day since my diagnosis so when it is my time I hope not to have regrets.
Saturday, September 1, 2018
Your Never Too Old
This year was the summer of the wakeboard. I have been an avid water sports enthusiast my entire life. Somehow being active on the water just puts everything into perspective. Last year we upgraded our boat and the new one has a tower and came with a wakeboard. I tried wakebarding in my early 20’s but never really did it enough to be considered a wakeboarder. I would rather slalom ski anyway.
This one hurt pretty bad. Eventually I started to get the hang of it and by last weekend I had learned to fly.
The Importance of Prostate Cancer Screening
Tuesday, August 28, 2018
P.C. Claims a good man
Friday, August 10, 2018
5 Years on Zytiga
I did not see my doctor but rather the P.A. I am fine with that as my disease is stable.
We have spent much of the summer as we always do. On the water! Since the end of May, there have been very few weekends at home. I have spent as much time as possible learning to wakeboard better. My goal was to complete a backflip by summers end but after my last crash I am rethinking that goal. Wake boarding might be a lot slower than Slalom Skiing but the wipeouts hurt far worse. Imagine traveling at 25 mph and having your feet suddenly stop. Ouch!
Two weeks ago my sweetheart and I became empty nesters when our 20 year old decided it was time to fly away. She lives a mere 8 miles away but I cannot believe the difference in our lives. We have never experienced having the house to ourselves. It is so peaceful. We are finding out what it would have been like had we met in our teens. It has been kind of fun.
Wednesday, August 8, 2018
Survey opportunity. $50 Amazon gift card reward.
Wednesday, June 6, 2018
12 Years
Tuesday, May 8, 2018
Good news bad news
Monday, May 7, 2018
The power of Potassium
Saturday, April 21, 2018
Taking a toll
This is what the bathroom looks like two days after making the decision to update it.
This is what it looks like today. All that is left is to install new doors, trim, and to tile the shower surround around the tub. In regards to the bathroom I can see the light at the end of the tunnel. It would’ve been done where it not for and event that started Sunday last.